Marfan Trust

The Marfan Trust is the only charity in the United Kingdom dedicated to improving and saving the lives of people with Marfan and Loeys-Dietz syndromes. We provide personalised support and medical guidance through our helpline; we educate the public and professionals alike through information guides, webinars, conferences, website and social media; and we conduct cutting-edge, internationally recognised research into improved treatments for the syndrome through our designated medical lab, the Sonalee Laboratory.